Message from the President
We created the Will Bennett Fellowship to raise funds for cutting edge Muscular Dystrophy research programs.
Our son William was born in June 1996, weighing in at a healthy 10lbs 1oz, and our life as parents began. As Will grew, people would remark on his amazing muscularity for his size. At 2 years of age, he looked like a body builder with ripped muscles and large calves. We just assumed he would follow in his father’s footsteps to play one day for the San Diego Chargers. He was always a little awkward running and walked on his toes, but we passed it off as being a big boy and convinced ourselves he would grow into his coordination.
As time passed we began to get concerned at his lack of development, but it wasn’t until he went to school that it became very noticeable. We tried some manual therapy to stop Will walking on his toes, which worked very well, but as his feet flattened out his back began to arch. It was at this time we did a blood test that confirmed William had Duchenne Muscular Dystrophy. As MD was explained to us we were totally devastated, realizing the muscular body and the toe walking were symptoms of MD we had no idea about.
The harsh reality is that most kids like Will are wheelchair bound somewhere from 10-12 years of age and as of now there is no cure for MD. As parents we prefer to look towards research as our future; there are great medical minds all over the world working towards finding at least a partial cure to slow the muscular degeneration while a full cure is pursued.
The support we gain will help continue to assist families facing the crisis that is Muscular Dystophy, and other sufferers of neuromuscular diseases, to one day stand up and thank you for helping to find a cure.
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